Progress!

As many of you know, my husband Martin has acute psoriasis.  It's been very bad, bad to the point that his feet are so afflicted he is barely able to walk and can not wear shoes.

He started participating in a research program at U of M using Enterecept.  These are injections that were originally developed for something else and found to heal psoriasis.  The side effects, however, are scary. (Higher chance of MS, TB, liver damage, etc.)

Guess who is the lucky one who gets to actually administer these injections?  Yes, that would be me.

No worries of me becoming an IV drug user since the needles really creep me out and I absolutely shiver and freak out giving Martin his injections.  I hate doing it.  I absolutely loathe and detest it.

The good news? 

It's working.  Martin's skin is looking clearer than it has since we met.  It's remarkable.

His doctor is fantastic, and so cute and little, you want to put him in your pocket and take him home and put him on a shelf as a knickknack.

If you'd like to know more about Martin's journey with this experimental drug, you can read about it here.

As a side note, every time I have difficulty jabbing him with the needle, I just think of the last time he pissed me off and that makes it so much easier.

I am an evil bitch.

Comments

[Martin]

I am indeed doing much better these last few days. The meds DO seem to be kicking in as far as the upper part of my body goes anyway. My feet are still horrid but I think that will sort it's self out in time. Plus the side effects seem to be lessening so I'm sleeping, eating, and not puking 12 times a day now (bonus!). I had a weird experience last week. All the nasty scaling on my scalp just fell off! I spent 2 days combing and washing it out of my hair. Here's the weird part. Washing and brushing my hair now feels very odd. See I've had hard scaly stuff up there for 14 years, it's so weird to be able to feel my hands or a brush on my scalp. So I celebrated and went and got a trendy new haircut and that really made me feel good for once.

Martin

[Darr]

Great news! I'm so glad you were able to find a doctor that actually cares about what he is doing.

Mark had to give me an injection once. When he tried to stick me in the bum, the needle bent. Apparently I am truly a hard ass. The whole thing was very comical, but it was only once. I wouldn't want to go through it often.

(something weird is happening and I can't delete anything - hence the strange letters at the end!) aanai si

[Michelle]

That is SO cool! I'm so glad something is working for him and that the side effects are lessening.

[nicole]

I just heard about that med from a patient of mine. Martin, you have a lot more healing to look forward to. I read up on it because I was curious, and that patient told me it only gets better with time. Awesome. I love it when medicine works!

[Martin]

I'm excited about the progress I have made I must admit. Just getting my hair cut last week was a big thing for me. After a decade of living with this, starting to get better is really a big thing to me.

- M

[Beth Miller]

Try using a mixture of Borage Oil and Avocado Oil on the skin. I can actually make a batch for you and send it to you if you would like.

[Pam]

Hey Martin,

I'm glad the medicine is working. I tan, and it helps the little spots that I have, but it's good to know that if they get worse, even if tanning, that there is something out there that will work.

Take care Pam and family

[Martin]

It is really making a difference. I'm only on week 6 (out of 6 months of treatment) but the difference is very noticeable already. Cross your fingers folks.

- Martin

[pamoliver]

my sister has been yet again in hospital, so many times. has been on all sorts of meds, serious psorias. now being started
on enterept? spelling.
need to know success rates has now been hospitalised 6 weeks.